Newly Diagnosed Newly Diagnosed

If you or someone you know has been newly diagnosed with SMA, please know that you are not alone. We understand the difficulty, confusion, and anxiety that comes with an SMA diagnosis. We want to help.

Making timely informed decisions about SMA care is very important, and we offer our support to you. Please do not hesitate to contact us at any time for any reason. We are happy to talk with you or write with you.

Contact us:

P: (916) 335-0430


For additional information and recommended reading, please click to visit our FAQ’s section on our SMA Library page.

You may be able to learn from our own experience. We have created this timeline to allow others to gain some insight into our case. Keep in mind that each case of SMA is different and our child’s needs and care may not necessarily reflect the needs and care of your child.