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Winter Wonderland and the Nutcracker!

From Kate: 

First and foremost, lockdown is a very serious thing. Keeping Getty inside and away from public outings to keep her away from all kinds of germs and whatever is lurking, I truly believe has been our saving grace the past, almost five years. But as Getty gets older, we need to keep into consideration that she is almost five years old and we want her to experience certain things, and well certain things just happen to be during the worst part of the year. The time in which germs are bouncing about and a time that she could get sick. We are by no means careless, we are still absolutely vigilant in the germ department, but man, we did not want her to miss two really cool things. I mean two REALLY cool things.

Let me give you some kind of perspective. In Getty’s first year of life, we left the house……..maybe four times and those were for doctor appointments. Her second and third have also been that infrequent. Illness is no joke over here and when you create a suitable wonderland in your house, it is easy to forget that there is an outside to be seen. I still have nightmares of when Getty was in the hospital at 14 months. I don’t want Getty sick and I surely don’t want to end up in the PICU. This is our normal. A common cold will turn into something bigger than we might not be able to handle and we try so hard to keep it at bay.

So yes, taking her to out twice during RSV/sick season is risky, but look at Getty’s face and you can tell that this experience was so worth it.

A few Saturdays ago, we took Getty to a Winter Wonderland light show. This was the first time I had driven Getty solo. Yes I freaked out, but there was a certain kind of calm to driving her. It gave me some confidence to be able to take her out on my own again someday. The light show was amazing! We strolled around Cal Expo for about two hours and I don’t think Getty made a peep the entire time. Her eye balls almost popped out of her head and she just seemed to be in an awesome trance of “OMG”! We were able take Getty really close to most of the exhibits. We needed to keep moving. Getty got rather fussy when we stopped to talk or gaze longer at some of the exhibits. I asked her whether she was having a good time and when we locked eyes, that was her way of saying, “indeed mom, now keep moving”!

This trip was on the rather safer side. It was a public event, but it was outside. We both felt a little more comfortable having Getty out for a good two hours and making sure she was safe. It was a hit to say the least. Getty cried as we took our leave. We knew her time at the park was memorable, but we really should have stayed longer. When we got home and got her ready for bed, she was chatty as all get out. We are so glad we took her.

Winter Wonderland 

WInter Wonderland




The Nutcracker, we have decided will be an annual tradition. We took Getty last year and she had a phenomenal time. When you put dancing and music together, you have one very happy kiddo. I found a beautiful holiday dress for the little lady to wear. I thought it would suit the occasion. Getty is very perceptive. If she senses anything different in the day or if I am nervous for any reason she will not nap. Even if she is tired, she will perk up because she knows something is coming. So everyone in the house could not talk about the upcoming Nutcracker for a few days. We could not talk about what day it would be or what time. She is such a sleuth. :) We needed her to sleep because the performance was at 7pm and she needed a hardy slumber before the festivities began.

Well the Nutcracker did not disappoint. Getty loved it, the performance was amazing and everyone at the theater was so accommodating to our needs. Even though it was another public outing, this one was a closed building and while it gave us some uneasiness, the look on Getty’s face the entire performance, reassured us that we were doing the right thing. This was something we needed to do. So we will continue to come to the Nutcracker every year and we will find just the right dress to celebrate the holidays and a special outing. It was so worth it. So incredibly worth it.

 The Nutcracker 





I know outings are few and far between, but when we have them, they are so special to us all. Making memories is what counts and I think living in the present is maybe one of the most important aspects of life. It would be easy for us to get into the routine of life and forget what is in front of us. It is easy to muddle days together and forget that special moments were shared. We try very hard to embrace all that is Getty. She is such an awesome kid. We are so lucky to be her parents. As she gets older we get to continue to learn from her and we get to understand her even better. Lately we are learning that she is pretty snarky. She will roll her eyes when I am too smothering. While that kills my heart, it helps me understand that she needs her space to grow leaps and bounds. She is also so incredibly smart. She likes routine and if we stray, well she lets us know immediately. :)

As the holidays grow closer we realize even more that we are so fortunate to have Getty happy and strong. She is a beacon of light that permeates throughout the house and inside each of our hearts. She is a force. She is one beautiful force of love.

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Dutch Bros. did it again……… guys are AWESOME!!!!!!!

From Kate:

To explain how incredibly excited and humbled we are would just not do it justice. Owners Steve and Nikol of the Sacramento area Dutch Bros. are just phenomenal people that make a difference in our community. We are so thankful to be chosen for Buck for Kids this year again. What an incredible opportunity to fundraise for families affected by SMA as well as for SMA research.

On December 5th, generous people stopped by and purchased yummy drinks, with $1 of their drink was donated to Buck for Kids.

Drumroll……..Dutch Bros. raised $3601 for Getty Owl Foundation.

Thank you, Thank you, Thank you!

If you are not already a customer of Dutch Bros., please become one. If you are a loyal customer, thank you and please stop by their locations as often as physically possible.

5289 Auburn Blvd Sacramento 95841
7445 Madison Ave Citrus Heights, 95610
8552 Madison Ave. Fair Oaks, 95628

You guys are awesome and your staff is equally amazing. CitrusHeights_Buck for Kids_IG_14-3624AR

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Dutch Bros.-Buck for Kids this FRIDAY!

From Kate:

Three things. Dutch Bros and owners Nikol and Steve are just good company/people. Simple as that.

Getty Owl Foundation was chosen again this year to be the foundation for their Buck for Kids program.

This Friday, December 5th come by one of the three Dutch Bros. and buy a drink.

$1 from each drink will be donated to Getty Owl Foundation.

5289 Auburn Blvd Sacramento 95841
7445 Madison Ave Citrus Heights, 95610
8552 Madison Ave. Fair Oaks, 95628

Now you understand why I say awesome. When a good company and wonderful people get together, magic happens and we are so thankful to be on the receiving end of this incredible generosity.

If you stop by please tell them they are simply awesome! They do so much for the community and they should be rewarded with copious amounts of praise.

Thank you in advance for stopping by. They will be giving out SMA fact cards as well. Let’s keep educating one person at a time.


CitrusHeights_Buck for Kids_IG_14-3624AR

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Commence 4th Annual Getty Owl Run/Walk Registration!

StartFrom Kate:

Well it is that time of the year. All of the planning, sweat, smiles, and hard work has come to this point…….4th Annual Getty OwlRun/Walk registration is OPEN!

This is our 4th Annual, our 4th year of organizing an amazing day with amazingly positive energy. We are so excited to get this underway.

Here are all of the DETAILS.

Here is where you REGISTER.

I will tons more information as the days get closer, but for now I just wanted to announce that we are up and ready! Oh and we really want to hit a new record this year. Our goal is to have 1,500 registrants. Last year we got sooooooo close.

We hope you can make it, we hope that you tell your friend and we hope you can grab your entire family and be a part of a really fun day that helps Getty Owl Foundation raise funds for SMA research. So far to date we have raised over $80,000! We are so proud, but we know we can do even better.

So mark your calendars for SUNDAY, FEBRUARY 22, 2015!!!!!!!!


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Apple Hill Gang & Updates

From Kate:

It has been pretty busy over here this past month. Lot of school, lots of adventuring, and just lots of stuff. I wanted to talk about Getty’s trip to Apple Hill. I used to come here at least once a year with my family as a kid and I have been wanting to share that experience with Getty but have been so reluctant. The weather isn’t good, or really the biggest reason is the elevation. Sacramento sits on, I think about 50ft elevation, nothing significant, but Apple Hill is 3,000ft. Mark and I have never taken Getty anywhere near 3,000ft, so I have always been very worried about that. Will she be uncomfortable? Will her ears hurt due to the increase in elevation? Will they naturally pop if they need to? Will she need oxygen if the air gets too thin? Will we go up there, just to turn around because she cannot tolerate the elevation?

All important things to think about. Well if you can see from the pictures, she was just fine. It was her mom once again that needed to just chill and let her experience life. :) My mom, Angie and I found a great spot that had accessibility. That I number one. If it isn’t paved, then we don’t stop. So we found a great place that had an petting zoo, delicious goodies for us to eat, a beautiful view and trail to walk. They even had a hay maze wide enough for Getty to go into. This place was magical. The weather was just right, Getty was in a terrific mood. I could tell she thought this trip was awesome!

Apple Hill


School is going great as well. Her VGo is awesome and it is giving her a chance to be a part of the classroom. She is literally a part of the class. They did a poem last week and she was the red leaf of the story. All the kids looked as she held her red leaf and waved it back and forth. The kids have been awesome this year. They all say good morning and good bye and in between they ask her questions and make her beautiful pieces of artwork. As the kids play with certain manipulatives, Getty is as well. She is learning math, problem solving, and social skills. We are so proud of her. On Halloween, the teacher asked that the kids dress wacky, so I put as many bows in her hair as I could. The kids thought that was pretty wacky.

A least one day a week we have been having “upright day” while at school. Getty is still tolerating being upright with the help of her bi-pap. She loves the perspective and the kids are always super excited when she is. It is so cute to watch one of the kids see Getty upright and then they have to announce to the entire class and 1) Getty is here!!!!!!! and 2) Getty is sitting up! Then the entire class rushes to the screen.

It has been hard to find time to get Getty into her power chair. School takes up a lot of her morning and then after her nap, we do a lot of book reading and playing, so getting her in the power chair time has really been difficult. But we did get her outside yesterday to play and she loved it. Navigating left and right was fabulous. She was stopping when we asked and she even watched her papa garden in the front yard.



The weather is slowly changing and it always makes me nervous. Lockdown has happened, but not? The days are still warmer, so we are trying to get outside every chance we get. Getty keeps growing. It is amazing how much she has evolved in the past year. We are so proud of her. Such a little lady, yet also a fierce warrior.