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12 Reasons to Celebrate Recipients Announced!!!!!!!!

From Kate:

I will get straight to the point. Let’s get straight to announcing our 12 Reasons to Celebrate recipients.

Before the announcement, I just want to thank every single donor who allows us, Getty Owl Foundation to be able to support so many SMA families. It has been an absolute joy to be a part of such an amazing community. It is truly an honor to be able to give back to so many families who have offered support, love, knowledge, and simply comfort to not only our family, but to so many others.

After using random.org to gather 12 names, here are the selected recipients.

Happy Holidays, stay healthy, stay safe, and hug all those around you!

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12 Reasons to Celebrate!

From Kate:

It is that time of the year when Getty Owl Foundation can truly celebrate our efforts to support as many SMA families as we can.

I know I don’t have to say this year has been difficult. We collectively have all been effected by this pandemic. It is hitting us all in ways we never saw coming. Being away from grandparents, always being on guard to withstand COVID-19, and perhaps feeling the strain of economic uncertainty. It hurts, we are tired, and with hope, a new day is coming around the bend. Hang in there, we can do this!

For the past five years we have been able to gift Apple iPads to over 50 SMA kids! We are so thankful to have filled a stocking or two with some awesome tech that can truly open doors for our kids.

This year we are so thankful to be able to continue our efforts to support SMA families. We literally have 12 Reasons to Celebrate!

We will be having a giveaway for the holidays. SMA families, we hope you can join us!

This year we will be gifting the following items to 12 SMA kids:

Each gift box will include:

-(1) iPad mini

-(1) Otterbox iPad holder

-(1) $50 Apple Gift Card

How to enter:

-Email us at hoot@gettyowl.org with the following information:

-Your name

-Your child’s name

-Address

-Phone Number

-Attach a picture

DEADLINE FOR ENTRIES: DECEMBER 11th

GIVEAWAY RECIPIENTS ANNOUNCED: DECEMBER 12th

  • As with all giveaways, each gift box will be gifted to individuals with SMA. Our Getty Owl Foundation only supports those with a diagnosis of SMA.
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18+ Reasons to Celebrate the Holidays Recipients Announced!

From Kate:

I love days like this! Giveaways are so fun and they fill my cup every single time. I would like to again thank, Henderson Construction Fabrics Inc., Dutch Bros. Coffee, and The Hope and Light Foundation for their incredibly generous donations. I would also like to thank everyone who has helped donate in this past year. Getty Owl Foundation would not exist without the confidence of donors, who are willing to give us a chance to make a difference. Thank you so very much.

Thank you to all of the families who entered the giveaway. I wish we could offer the prizes to all who enter, believe me are getting there, but for now for those who were not randomly selected, PLEASE come back next year, your chances are always good!

Alright here we go!

Recipients of the Powerlink 4 & $50 gift card

Recipients of an iPad & $25 apple gift card

Happy Holidays to everyone and have a terrific New Year!

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UPDATE: 18+ Reasons to Celebrate the Holidays

From Kate:

Getty Owl Foundation’s annual giveaway has always been a time for us, as a foundation to celebrate. We are so fortunate to be able to support the SMA community in ways that we know make a difference. It is so humbling when we get to work with local and national businesses, foundations, and families. Raising funds is hard work and making connections is also a time consuming feat. We love it, we are passionate about it, and it has truly been a rewarding experience.

I am here to announce that our giveaway has been “upped”. Thanks to The Hope and Light Foundation and their continued commitment to the SMA community, we now have the ability to give more.

18+ Reasons to Celebrate the Holidays Details:

We will NOW be giving away (18) 7th generation iPads. In addition to the iPad, the giveaway will include a iPad case. We are also adding a $25 apple gift card.

We will also be giving away (8) AbleNet Powerlink 4. We will also be adding a $50 visa gift card to put towards a switch to access the Powerlink 4.

DETAILS FOR ENTIRES STILL APPLY. READ BELOW FOR INSTRUCTIONS!

Happy Holidays!

From Kate,

Well the holidays are seriously upon us and I wanted to get our Getty Owl Foundation’s Giveaway, underway before it got crazy busy. Before I roll it out I wanted to take a second and mention how proud I am of our foundation’s, almost 10 year commitment to our SMA community. To date, we have gifted over 60 iPads to our community. I am normally not very comfortable touting such a statistic, but man, I am so proud of this!

Technology is the key to bridging the gap between communication, education and socialization. Getty has been positively reaping the benefits of technology since she was just months old. We are just so thankful to have a platform to support our community.

This year is no different AND we will be adding a terrific new opportunity for this year’s giveaway.

While iPads are great opportunities for access, so are many items that help SMA kids gather another level of independence. The company, AbleNet has a great item called a Powerlink 4. This item works with regular devices like blenders, lights, tv, etc. that normally be turned on and off. With the help of the Powerlink 4 and an access switch can give our SMA kiddos some really incredible independence. So we want to give a few away as well. Check out this LINK to learn more.

Before we get to the details, it is very important to establish how incredibly important it is to thank all of our donors who have helped make this giveaway possible. In particular, I would like to thank Henderson Construction Fabrics Inc. and Dutch Bros. Coffee Sacramento for their generosity. You make a difference for so many in our SMA community, thank you so very much!

Alright, let’s get to the details and get this giveaway underway!

14 + Reasons to Celebrate the Holidays Details:

We will be giving away (14) 7th generation iPads. In addition to the iPad, the giveaway will include a iPad case.

We will also be giving away (4) AbleNet Powerlink 4.

Alright how do you enter?

Super simple, just email us at hoot@gettyowl.org.

Needed info:

Name

Child’s name, type, age

Address

Phone Number

Lastly, ONE ENTRY per child. You can enter for BOTH an iPad and the Powerlink 4, HOWEVER you can only win either an iPad or a Powerlink 4 (you cannot win both). Recipients will be chosen randomly.

Alright let’s DO THIS!

ACCEPTING ENTRIES:

NOW———–Friday, December 13th @ 5pm PST.

Recipients announced Saturday, December 14th @ 12noon PST.

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BEEP, BEEP, @#$%! BEEP

From Kate:

What’s in a beep? A high pitched sound that is often a reason for alarm and gathering attention in its relentless efforts to ignite a sense of emergency. That is what a beep means to me. I do understand that there are a myriad of other kinds of beeps. Like for instance many cars have beeps to let you know when you have successfully locked your car, a microwave letting you know when your reheated coffee is ready for consumption, as well as your phone can also use their beep to suggest someone is texting you. A beep is also sometimes put in place of a curse word on TV. So putting a beep in a particular context can offer comfort and emergency. All too often in our world, a beep signal can offer frustration, emergency, and comfort all at the same time. It can be quite maddening. 

Getty has many devices that offer her all kinds of support. Truth be told, there is no way Getty would have successfully gotten to 4th grade without the immediate and long term support of these devices. But they also come with their own kind of distinct and maddening beeps. 🙂 Let’s take the Joey food pump as an example. Getty has been exclusively g-tube fed since she was 6 months old. In order to give feed her, we use this device to feed her safely and at the rate safe fro her to eat. There is a distinct series of beeps when the unit is turned on. There is also a very loud, high pitched beep when the internal battery is low and the unit needs to be plugged in. And then there is another beep for…….clogs. Those god awful clogs. Her diet consists of many things. Many, many things. In order to make sure she is getting all of the calories and overall nutrients in her daily diet, many ingredients need to be contained in the bag that hold the food and run through the Joey food pump. From trial and error, we have finally and successfully found the right liquid consistency to get through the day without a clog alert. A clog alert is a loud and consistent series of beeps that do not stop until you have manually stopped the beeping. Once the beeping stops the time for remedying the issue of the clog begins. Is there a crimp in the line? Was the consistency of the food just too thick? And then how did the consistency get thick when I make this food EVERY DAY AT THE SAME MEASUREMENTS? Was the bag just faulty? Is the unit on the fritz? Should I just ditch this effort to salvage the bag or should I sit and figure this out? But if this is just human error and it is a perfectly good bag, I need to just figure it out. I only get 30 a month and if I throw this out, how am I going to fix the issue of shortage in the inventory? Maybe manipulating the bag a bit and trying to get the line to unclog might work, try that first before you give up. Well that didn’t work, where are the extra bags anyway? The closet, it’s 3am and I can’t see anything and I am literally sleep walking, where is the closet again? If this second bag gets clogged as well, I am literally going to through this unit through the window! Beep, Beep, @#$!% Beep. Fail! 

I appreciate all of the beeps, don’t get me wrong. Without them, even while sleeping right next to Getty, I wouldn’t know if her food stopped pumping. I would have been alerted by the excess amount in the morning and that would be too late to help recoup what nutrients and strength she may have lost due to excessive fasting. Our kiddos, especially type 1’s, cannot fast more than a few hours. They aren’t physically capable like most of us. Our kids can’t just fast. They have to be consistency fed throughout the day to keep hydrated and full. So the beeps are major indicators for us to know that something needs to be fixed and being able to spring into action is so crucial, but man, I am human, and the beeping can drive a person crazy. It can leave a person conditioned for a particular beep, even outside of the home. 

I can’t tell you how many times I have been out and about getting some air, for a temporary change of pace, only to be overcome with worry or dramatic responses to a beep. Like for instance, a cash register, who knew that would offer a negative, almost dire feeling dread, like someone’s life held in the balance when sitting in line to purchase clothing, but it has. Old Navy, please change your beep, it sounds like an alarm beep on Getty’s pulse oximeter and I instantly assume someone is desatting in the store and no one seems to care. Yep, its bad! 

The grocery store isn’t safe either. There are beeps for price checks, registers, scanners, and heaven forbid a forklift reverses in Lowe’s. It is maddening. I think for many medically fragile families, beeps mean something fierce and even while doing the best you can to get outside, to breathe hopefully non-germy air, the beeps are still there and it’s up to you to remind yourself that it is seriously unlikely that someone’s pulse ox went off and their oxygen just plummeted in Sephora, or someone’s Bi-PAP beeped in Foot Locker to let them know that their internal battery is low and needs to be plugged in, or that while eating in Chipotle, someone’s suction machine battery just went out. Nope, we are all just going to have to realize that, “Life has beeps, lots and lots of beeps.” Not a bad quote for really any kinds of adversity. 🙂 

Hang in their families. One day at a time. And in our case, one beep at a time. 

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