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Home » What is SMA? » SMA Library


SMA Library SMA Library

SMA GENERALLY

  • Consensus Statement for Standard of Care in SMA [General]
  • Consensus Statement for Standard of Care in SMA [Family Guide]
  • Introduction for SMA Families
  • Caring Choices for SMA
  • SMA MebEd Cafe Webcast
  • Article on Timely Review of SMA

RESPIRATORY

  • Respiratory Management of SMA – Schroth
  • SMA Acute Respiratory and Extubation Protocol
  • LMN Synagis Getty- Denial Overturned
  • Breathing Basics for SMA

GASTRONOMY

  • Gastronomy Tube (G-tube) & Nissen Fundoplication Procedure

NUTRITION

  • Consensus Statement for Standard of Care in SMA [Nutrition]
  • AA Diet Info for SMA
  • Muscle Metabolism
  • SMA Dietary Needs from a Metabolic Specialist
  • What is the Amino Acid Diet?

GENETICS

  • Claire Altman Heine Foundation (Carrier Testing)
  • The Genetics of SMA
  • Article on Screening & Carrier Testing
  • Article on SMN2 Gene

RESEARCH

  • Article on Dr. Kaspar’s Gene Therapy as Possible Cure for SMA

EQUIPMENT & SUPPLIES

  • SMA Medical Supply
  • Inside SMA

EDUCATION & COMMUNICATION

  • SMA iPad

NETWORKING

  • FACEBOOK: SMA FAMILIES, PLEASE CONTACT US VIA EMAIL OR PHONE SO WE MAY HELP YOU NETWORK WITH OTHER SMA FAMILIES
  • FACEBOOK: Getty’s Page (Click Here)
  • SMASpace

 

 

 

 

 

 

 

 

 

  • Are you a carrier? Newly diagnosed?
  • Sweet Water Child Lullabies - Listen

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