Getty Owl Foundation

SMA GENERALLY

• Consensus Statement for Standard of Care in SMA [General]

• Consensus Statement for Standard of Care in SMA [Family Guide]

• Introduction for SMA Families

• Caring Choices for SMA

• SMA MebEd Cafe Webcast

• Article on Timely Review of SMA

RESPIRATORY

• Respiratory Management of SMA – Schroth

• SMA Acute Respiratory and Extubation Protocol

• LMN Synagis Getty- Denial Overturned

• Breathing Basics for SMA

GASTRONOMY

• Gastronomy Tube (G-tube) & Nissen Fundoplication Procedure

NUTRITION

• Consensus Statement for Standard of Care in SMA [Nutrition]

• AA Diet Info for SMA

• Muscle Metabolism

• SMA Dietary Needs from a Metabolic Specialist

• What is the Amino Acid Diet?

GENETICS

• Claire Altman Heine Foundation (Carrier Testing)

• The Genetics of SMA

• Article on Screening & Carrier Testing

• Article on SMN2 Gene

RESEARCH

• Article on Dr. Kaspar’s Gene Therapy as Possible Cure for SMA

EQUIPMENT & SUPPLIES

• SMA Medical Supply

• Inside SMA

EDUCATION & COMMUNICATION

• SMA iPad

NETWORKING

• FACEBOOK: SMA FAMILIES, PLEASE CONTACT US VIA EMAIL OR PHONE SO WE MAY HELP YOU NETWORK WITH OTHER SMA FAMILIES

• FACEBOOK: Getty’s Page (Click Here)

• SMASpace