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GETTY WINS 1st Round of Baby Idol Contest on Sacramento 107.9 The End

From Mark:

Thanks to all your support, Getty has won the 1st round of the Baby Idol Contest on Sacramento radio 107.9 The End!

She won $100!

I was groggy on the radio early this morning, just waking up. The DJs said, “Getty looks like baby Brad Pitt.”

The DJs’ backpedaling and apologizing was amusing when I said Getty’s a girl. I told them it’s ok because many people have said Getty looks like me; therefore, I must look like Brad Pitt.

On to the finals to shoot for the $1,000 grand prize (and a potential opportunity for some SMA awareness on the radio :))!

Thanks for your votes!


Sacramento Radio Contest – Internet Votes Needed

From Mark:

A Sacramento radio station has a Baby Idol (cute baby pic) contest. Grand prize is $1,000.

If you want to vote, it needs to be done today, Thursday, January 27, by 9 pm Pacific Time. You need to click to get into the voting area and register though.




Meet Team Getty Runners: Lisa

From Kate:

I wish Getty could type this Wednesday’s Team Getty Runner profile. She is laying right next to me and I can tell she is just fascinated by how my fingers hit the keys of the laptop. Getty is also chatting it up as if to tell me what I should be typing. How did I become her personal secretary? 🙂

Remember signing up to be a Team Getty Runner is easy. Just email us at and we can get you signed up. All abilities welcome and remember you don’t even have to run the entire thing, you can grab a few friends and run the relay.

Tonight I give you Lisa.

Name: Lisa JoMarie Beckman
DOB: 9/25/72
Favorite Colors: Forest Green
Favorite Hobbies: Time with animals
Have you ever run a marathon: No
Had you ever heard of SMA? Not until my friend met Getty Owl.

I am a Christ follower who is compassionate towards people and animals. I was raised in a fun, loving family in Truckee, Ca. I have a beautiful 13yr old step-daughter who I love and admire. If I could live anywhere right now, it would be in an RV with the freedom to travel around the country. I work at William Jessup University with some of the most compassionate, unique, and loving people I have ever met. I am honored to support the awareness of SMA. It’s the least I could do.

Thank you so much Lisa for joining the crew and running for Team Getty and helping to raise SMA awareness!

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10 Months of Getty Spaghetti

From Mark:

Today is Getty’s 10 month birthday!

The days are getting longer, we are more than half way through RSV season, and Getty is doing well. She has one more Synagis shot to get, and we can’t wait for spring to arrive to take her around and show her more of the world than the freeway and Kaiser facilities.

We reduced her daily calories because she’s getting to be a bit of a chunk! Being able to gain weight and keep it on is a good thing for an SMA baby, but as with all things, there’s a limit. We increased her calories a few months ago and she had a huge growth spurt, blazing her way through some clothes sizes.

We increased her cough assist machine pressures, which probably makes it a bit more uncomfortable for her to go through her daily routines, but did she fuss? Not at all. I am so proud of our little scooter!

January has been the first month we have been able to be at home without any major medical worries since the diagnosis came at the very end of July 2010. In August, we were terrified with the brand new diagnosis as we struggled to climb from the very bottom of a steep learning curve. In September, October, and November, we were starting Getty’s collection of medical equipment and fighting our doctors about various protocols as we worked our way toward Getty’s G-tube and Nissen sugery in mid-November. In December, Getty was re-admitted to Kaiser Hospital to get her bipap machine settings done. Now it looks like we finally have a g-tube, a Nissen, and all the basic SMA gastro and pulmo equipment.

Best of all, we have a great deal more peace of mind. The time we spend together playing, singing, and hooting lacks that undercurrent of anxiety that has been so prevalent for the past 5 months. When I look in your beautiful blue eyes, I can afford to appreciate you more and more as my daughter without being so concerned as if you were a patient. I love singing, smiling, and playing with you every day and watching you grow and learn. I marvel at how your charming smile has inspired so many to do such wonderful things.

I love you, Little Getty Owl!

Happy 10 months!


Nappy Time

Nappy time!