Getty Owl Foundation

Ear Pillow Recipients Announced!

From Kate: 

Truth be told, I love giveaways! I LOVE THEM! I am so thankful Getty Owl Foundation has the ability to gift items to our SMA community. Knowing we are able to find ways to offer support to families just like us is serious therapy for me. 🙂

I know all too well how a day can start out wonderful and change in an instant when your child is in need of something life threatening. It is jarring and it only takes a second to change your child’s life and your weary heart as a parent. So while our giveaway was just for an ear pillow, it is a lot more than that. I remember when Getty was younger, we were given a gift of an ear pillow and it meant the world to me. It meant Getty would be more comfortable sleeping at night. It meant someone out there in the universe had thought about the special need our daughter had and filled it. It gave me some calm assurance that there were other SMA human beings out there that may be walking a similar path. 

Terri Taylor and Nancy Boman, this what you both offered to our SMA community. Thank you so much for filling a need to so many. We can’t thank you enough. 

Here is a list of our Ear Pillow Giveaway recipients:

Aurora

Jericho

Gavin

Kristen

Samuel

Constance

Ryan

Alethea

DeAnn

Elizabeth

Aubriana 

Ember

Brett

Mateo

Claire

Emma

Nick

Kennedy

Jaci

Kate

Jayke

Isabelle

Kaitlin

Caitlin

Jackson

Isaac

Nawai

Gracyn

Emma

Armani

Killian

Charlie

Kaige

Tina

Wyatt

Andrew

Leah

Elliette

Emmett

Victoria

Sheyenne

Ariane

Lincoln

Wade

Haley

Elliot

Samantha

Ear Pillow Giveaway

From Kate: 

I would like to start by saying, the SMA community is one of ultimate support. We all find ways to help each other. Mental health, care strategies, sharing personal testimonials, offering a supportive ear, making gadgets, building ramps, sharing supplies, suggesting positional aides, etc. This is an incredibly short list on how SMA families have found ways to lessen the load and care for each other. While it is true that we all know our kids better than doctors, having fellow SMA virtually to lend support is like having an extended family around the world. 

I would like to thank two individuals who came up with an amazing giveaway for our community. The idea was to make and giveaway ear pillows like the one Getty is using in this picture. Ear pillows are such a game changer for kids and adults. Speaking from our experience, Getty cannot use regular pillows because they smoosh her ear. Because she is non-ambulatory, she doesn’t have the ability to move her head and so a smooshed ear can not only be uncomfortable but it can also cause pressure sores and skin breakdown.  Ear pillows have a hole in the middle, so her ear is clear from any pressure. They are so amazing! 

These two amazing people saw a need in our community and they are filling it with this giveaway, Getty Owl Foundation is just a vehicle for distributing the pillows. 🙂 Please join me in thanking Nancy Boman and Teri Taylor. 

Thank you both for finding a way to make a difference for our loved ones. Thank you for you time and resources to make 50 ear pillows! We are so thankful for your willingness to help others. 

Again, I know this goes without saying, but this giveaway is for the betterment for all persons living with SMA. Thank you for understanding. 

For those interested, email us at hoot@gettyowl.org:

Name

Age

Address

Attach a picture of you or your family member so we can make a collage with all of the recipients. 

These is no deadline. Once we hit 50, I will update this post to announce the recipients.