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The week we found out about Getty’s diagnosis we contacted Families of Spinal Muscular Atrophy (FSMA) for their information packet. Along with the packet came a HUGE box full of gifts for little Getty. Her absolute favorite gift has been a cloth bear, that we call Mr. Teddy. She takes Teddy with her for naps. He is just light enough and small enough for her to hold and cuddle.
Teddy was handmade by a grandmother with an SMA grandson. It is in tribute to him that she makes hundreds of them. Mark and I hope to find something significant to add to the care package one day to help make families feel more comforted after learning of their child’s diagnosis.