The other day, we went to visit our pulmo post-op just to let him see how Getty was doing after her G-Tube and Nissen surgery. Just before the visit, I had been communicating with the SMA community about emergency protocols. Some had suggested getting a supply of oxygen.
We asked our pulmo for some O2.
“I’m reluctant to prescribe oxygen for home use. Some people … I prescribe it … and they use it when it’s not necessary.”
He gave a pregnant pause.
“But for you … I’ll do it.”
Eight hours later, a truck pulled up in front of our house. The driver came out and delivered two tanks of O2.
Also during our pulmo meeting, when we brought up getting a home bipap machine, he grew visibly frustrated. He explained that he was working diligently on securing the machine, that he was very upset with the supplier for not having it already, and he had been on the phone the past few days yelling at people to get our bipap.
He is learning that when it comes to helping Miss Getty, we are serious and aggressive. When we ask for something, we’ve done our homework, and there’s a good reason for it. Our pulmo is catching onto us and not only being responsive but also doing some advocacy himself.