Today is a moment so many, many, many, families have been waiting for. My mind is a bit scattered right now, but for now, this is what we know.
I wish I could describe my thoughts and feelings articulately, but I can’t so I will just get back in bed with Getty and snuggle her.
If you have a moment, please read.
“We are seriously in uncharted territory in the SMA community today. We finally have a viable treatment for SMA. This one counts folks and we are just so beside ourselves in celebration. This treatment does not discriminate. It is for all types! ALL types!!!!
Our love goes out to all SMA families. Our hearts are with all angels and warriors and their families.”