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Who Wants To Be A Millionaire: Getty Owl Foundation

From Kate:

I got a call a few months back from what I would consider an incredibly awesome human being. Unbeknownst to me, I started a conversation with Clare Crawley, from the TV show, The Bachelor. We spoke about her family, we spoke about her tie to Spinal Muscular Atrophy, and we had a great conversation about what she could do to help families affected by SMA and how she can support Getty Owl Foundation to help make a difference.

She then began to tell me that she will be on Who Wants To Be A Millionaire and that she had chosen Getty Owl Foundation as her charity. “Um, What?” is basically what came out of the mouth. What an amazing opportunity to be able to talk about Spinal Muscular Atrophy on a national stage. I mean, how many ears is that? 🙂 So many!!!!!

So I am here to announce that you can watch Clare Crawley tomorrow, Thursday, December 1st on Who Wants To Be A Millionaire.

Here is a LINK to find out tv stations and times.

On behalf of our family and our entire board and volunteers of Getty Owl Foundation, we offer a HUGE thank you to Clare Crawley for choosing Getty Owl Foundation as her chosen charity. It is because of awesome people like you, that we can continue the work that we do.


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Falynn’s Wings


We are heartbroken to learn that Falynn, the beautiful daughter of our friends Rian and Gonzalo, has passed away. SMA claimed Falynn’s life and tore into the hearts of her family and her “extended” family, the SMA community.

Falynn, about a year younger than Getty, was vibrant and full of life. Falynn was a charming and happy little girl with a zest for life. She was and always will be a shining example of resilience and beauty.

Falynn inspired Gonzalo and Ryan to launch Falynn’s Wings, a nonprofit helping those with  spinal muscular atrophy. They are dedicated and loving parents, charitable and giving people, and an inspiration to many. Nobody deserves this kind of loss and pain.

We are deeply saddened and send all our love as we grieve with them and try and make sense of this wicked disorder.

Please keep them close in your thoughts and prayers.

We will miss you so very much sweet Falynn.


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The Time Has Come……6th Annual Getty Owl Run/Walk is Here!

From Kate:


I am so happy to announce our 6th Annual Getty Owl Run/Walk is coming at you, Sunday, February 26, 2017!

More details to come, but for now, mark your calendar for our 6th Annual. We are so excited and are happily knee deep in all things planning. Over the past five years of our event you have helped us raise over $150,000 to help support families affected by Spinal Muscular Atrophy. Your dedication and support has helped Getty Owl Foundation send money into the direct hands of scientists and doctors on the front line of beating this disease. Thank you for your support!

We are and will always be a 100% volunteer non-profit. We depend on support from our local and national community and we are just so thankful for your support for these almost 7 years of our existence.

We have so much to be thankful for. Getty is now a 6 and a half. A first grader who enjoys books, reading books, and listening to people read books. 🙂 Our little bookworm continues to grow in her sassiness and relish in her friendships with her friends at school. We are so very proud of her and all of her accomplishments so far.

So stay tuned, more details to come, but for now perhaps you and your friends and family can consider joining us again for our 6th Annual Getty Owl Run/Walk.


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Swing Giveaway Winners Announced!

From Jadon’s Hope Foundation and Getty Owl Foundation:

On behalf of our families and our foundations, we would like to thank everyone who participated in the Swing Giveaway. We are simply humbled by the response. Thank you all for taking the time to enter your child. Over 100 entires were collected. We then had the hard task of randomly choosing 12 recipients for the giveaway. After a little deliberation we decided that 12 was simply not enough, so we upped it to 20! We hope you enjoy your swings. Now go and create new memories and swing to your heart’s content. 🙂

The following families have been randomly chosen as recipients of our Swing Giveaway:
All families listed will be contacted by either Jadon’s Hope or Getty Owl this week. Congratulations and enjoy!

Alexa Felix

Aubriella Eggert

Ayden Trammell

Benjamin Grindle

Cheyenne Parra

Danielle Pruitt

Diego Mojarro

Elias Mezouar

Evan Breton

Hannah Price

Jackson Silva

Jacob Goodson

Lillian Schwarck

Madison Reed

Micah Hargrave

Ryder Davis

Scarlette Ricotta

Silas Apgar

Trevor Hinebaugh

Zachary West 

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Thank you Dutch Bros.!

From Kate:


We are so proud and humbled to announce that the Bucks for Kids fundraiser has produced an incredible total. We would like to thank the Grubbs Family, their Dutch Bros. staff and family, and everyone that stopped by to purchase a drink to help support Getty Owl Foundation.

Together you raised $5,434


We are so thankful for all of the support. We are and will always be a 100% volunteer non-profit. Funds raised give us the ability to continue to support and advocate for families affected by SMA. We cannot do the work we do without the support of many. Thank you so very much for giving this opportunity to us. We know how special this is.



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