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Get Your Tickets!!!!

by: Stacey

I’m super excited to announce some of the items that we will be raffling off on Saturday!!  The donations have been AMAZING and I know everyone is not going to want to miss out.  So, without further ado…here is a sampling of the items to be raffled off:

We have shirts, totes, jewelry, art, quilts, postcards, cupcakes, hats and more!  In addition to the items picture above we have a $50 party pack from Big Spoon Yogurt, $150 in River City Brewing certificates, Dainty Little Sessions with Morgan, $120 in hair product and $200 in service certificates, $150 Eleakis and Elder Photography, $25 Zuda Yoga, $50 Styleyes, $50 Luxe Salon, $20 Byuti Salon, $25 Fringe, $25 Koukla Kids, $25 Tapa the World, $20 Pulp Papery and $25 Ju Hachi Japanese.  More items are coming in daily and we have prizes valued over $300!!!

The best part…you don’t have to be present to win or even live in the area.  Everyone is open to entering the raffle.  Raffle tickets are $5 for 8.  You can buy them the day of the show or you can buy them by contacting me at staceyball@gmail.com.  Raffle will take place on Saturday after the GETty Crafty event!

Thanks again to everyone for their generous donations!  Get your raffle tickets now!!

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Fall is in the air!

From Kate:

There is one week left before GETty Crafty at Fremont Park. We are all so very excited for the event. I seriously don’t know how she does it, but Stacey I can’t seem to do anything but thank you so very much. You have a true talent for coordinating on a time line. This is your calling and seriously someone needs to hire you or perhaps you should do this on your own. You seem to get everything done with ease, and it has been a joy to help how I could.

Fall is clearly in the air. I got a chance to walk around downtown to hand out posters for the event and I can’t tell you how wonderful it felt to be outside in the air. Meeting people, telling them Getty’s story, and a leaving a poster or two was very rewarding. And as I had suspected, no one I spoke to had ever heard of SMA. Most were surprised that it even existed and a lot of them were floored when they heard that SMA was the #1 genetic killer of infants. Boy if I had a $1 for ever time a person’s jaw hit the floor, well I would have more money. No clue, never heard, exceptionally sorry for Getty was the general feeling. For me it felt good to spread the word, maybe those people will tell others about SMA. I can only hope.

My birthday is in the fall and I remember as a kid when the weather would change, I would grow more and more excited. As an adult that same feeling certainly has not wavered. With every leaf that falls, with every pumpkin patch that opens, and with every change in the weather it certainly tells me that celebration is just around the corner. I share my birthday month with my brother, my mother, and Mark and our wedding anniversary are all in the month of October. My favorite time of the year because we all get to be together and enjoy each others company. In the past I think I would have had a laundry list of birthday wishes, but as year’s go on, you tend to minimize with the most important needs.

So this year I have a few, in no particular order:

I wish that our Miss Getty remains strong in health.

I wish that Getty’s doctors will come to a consensus and embrace best practices.

I wish for all of our SMA families to continue fighting the good fight.

I wish for comfort for our friends in NZ. We think about Holly every day.

I wish for everyone to realize that family is first.

I wish for a gorgeous day next Saturday so everyone can enjoy time together and shop till they drop. 🙂

Last night we went to Home Depot to get a few PVC pipes. We made a bridge that Getty can lay underneath and hung toys that she can grab. I wasn’t sure if she was going to like it, but the second I attached a few rings on it, she grabbed immediately onto them. She squealed and talked the whole time she played. Wow, well I think we have something. So her grammy made all kinds of things to hang on it. Bells and feathers are now new additions that Getty just loves. Thank you Mom, this is such good physical therapy for Getty.

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And the vendors are……

By: Stacey

I am happy to announce that we have 77 vendors for the GETty Crafty event!  The turn out and support for this show has been tremendous.  I wanted to take a moment to give you all a glimpse into what will be for sale.

1 of A Kind Onesies

56 Green Beanies

A Unique Touch

Adornments From Deborah

Ana Apple Designs

Bakers Design

Bear Heart Jewels

Beau Melange

Becky Lutman

Beelightful

Bella Lilies

Bottle of Clouds

The Briare Patch

By Steffy

Caesars Scissors

Clay Daze

Colleen Cardoso

Crafting Out Loud

Creepy Glowbugg Creations

Cupc4ke

Cupids Cottage

Dybrid

En La Lumie’re

Essensual Jewelry

Fat Ninja

Fly Drawings

Fly Like Hermes

Furlicious

Gaia Style

Glass Turtles

Grouse and Badger

Gypsy Jeweler

His Love Endures Forever

Jane’s Rustic Ranch Soap

Janet Camprini Designs

Jazzy Ears

Jennifer Eels Jewelry Designs

Jewel La La

Jiggy Bits

Kismet Sunday

Knittin Pretty

Lauren Signorelli

Lauren Smash Toys

Les Monique

Little Brown Box

Live Forever Couture

LVK Paper Dolls

Magnifiscent Soap

Marty May

Moon River Arts

My Gifted Chaos

Paisley Moss Boutique

Penny’s Lane

Pink Pomegranate

Plants n’ Rocks

Pup Stuff

Pure Palette

Rain’s Embellishments

Rapunzyl Designs

Revitalized Vintage

Ribbon Rock Stars

Rumpled Monkey

Shannon Marie Designs

Shark

Skeletal Drop Kick

Sky Fire Trinkets

Studio 390

Sweet Riah Skincare

The Grandma Touch

The Village Goose

Tres Hermanas Jewelry

Upcycled Unlimited

Virtue Knits

Wandering Mind Designs

Wear Yeti

Wise Earth Herbs

Wishes and Whims

A huge thank you to everyone that signed up for the show, that donated for the raffle and that is ALSO donating 10% of their sales that day to the Getty Owl Fund.  This show could not have come together like this without you!  Too all you attendees, visit the links….see what is in store…and get your pocket books ready for some serious shopping!

Stay tuned next week for a preview of what is in the raffle and a pre-sale of raffle tickets!

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Sacramento County Office of Education Gets On Board

From Mark:

We had a nice representative come over today from the Sacramento County Office of Education. They have an infant care program that will help Getty with various needs from getting some education tools, some therapeutic items, some physical therapy, and some other things we probably don’t even know about yet.

Our case worker is very nice and well-informed. She is offering us tips on how to possibly get Medi-Cal Waiver and Social Security.

I even got a little work done today!

Hats off to the County Office of Ed.! What a pleasant change of pace!

PS: Getty Spaghetti gets a bath!

 

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Why we fight?

From Kate:

This is why we fight. Getty is the most amazing gift that Mark and I could have ever asked for. She is our world. She is always happy and content. As she gets older we see glimpses of her special personality. She is silly and curious and she is just well, she is just Getty!

Good night sweet owl. Your mommy and daddy can’t wait to snuggle next to you.

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