


Lionel’s Place
From Kate: A few months ago at Getty’s school fall festival, I was introduced to a couple of dynamic women. Karen and Hannah were vendors at the festival and what they had to offer made my heart happy. Lionel’s Place, offered all kinds of fun pillows, prints, t-shirts, buttons, and an amazing book called The Little Lemon That Leapt. This is Lionel the lemon.

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Nov
2017
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2017
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SMA Holiday Giveaway 2017
From Kate: I love this time of year for so many reasons. On a personal level I love how the seasons change here in Sacramento. Yes, I loathe the fact that winter is not kind and viruses linger everywhere and we always have to be vigilant, but it’s still pretty outside.

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Nov
2017
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2017
Even Amazingly Beautiful Things Come To An End
From Kate: After six incredible and memorable years, we have decided to no longer host the Getty Owl Run/Walk. While we are very sad to come to this decision, it is also for beautiful reasons as well. We are thankful for Getty’s health and have decided in her interests, to give a back seat to fundraising and community outreach, for now. We will always help families affected by SMA, but for now an annual fundraising event will be put on hold. Over seven years ago I sat down and brainstormed. Getty was around 8 months old at the time. Life was going a mile a minute. We were entering a new phase of this SMA journey with a g-tube placement, increased breathing treatments, and a looming winter season that had the potential to harm Getty. There was also an overall heaviness that, at times felt suffocating. 8 months in, I was still a new mom, but I wasn’t sure what that meant anymore. I felt cheated out of my role as mom. I felt more like caretaker and first responder rather than given a chance to relish in this new position of motherhood. It was becoming very clear to me that my relationships with the regular world would just not be in the cards for me and our life. I was realizing that our lives were becoming less relatable. Stories about suctioning, resuscitating, and fighting with doctors were our norm, and while I am sure I isolated myself, out of pure survival, I retracted from what I considered my old life and tried to find something I could do to feel like I was becoming part of the solution, rather than allow for this diagnosis to control my every breath. I sat down and brainstormed about what we could do to make a difference in our community, and also create a place, a day, an event that could help serve several purposes. I wanted to bring the community together, raise money, and selfishly I wanted to feel whole. Out of the barrage of brainstorming blossomed the Getty Owl Run/Walk. It would be a day for all abilities and ages to enjoy a morning to support a cause and also enjoy a day to relax and reflect. I wanted it to be fun and fulfilling. As a runner myself, I thought, “How hard could it be to plan an annual run?”








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Nov
2017
10 Comments Nov
2017
Halloween 2017
From Kate: We hope every one had a safe and fun Halloween. Getty decided to be Wonder Woman this year. I would argue that she IS Wonder Woman, but at least she was willing to dress up as her role, finally after 7 years on this planet.

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Nov
2017
2 Comments Nov
2017
Thank You Dutch Bros.! Thank You Community!
From Kate: I would like to wholeheartedly thank the Grubbs Family, Dutch Bros. Coffee, and our great Sacramento Community for helping raise $6810, in the Buck for Kids event on September 29th! It was a HUGE success and we are so thankful for all of the continued generosity of Dutch Bros. Coffee. Thank you for all that you do for local causes, such as ours. We are so humbled by your constant support and love. Thank you to all for stopping by and purchasing a drink, or two. We are so thankful! What I know for sure is that this holiday season we will be able to gift more iPads to deserving children and adults affected by SMA, and that makes our hearts sing! Thank you all!
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Oct
2017
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2017
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