Getty Owl Foundation

Father’s Day Giveaway Recipients!

From Kate: 

What a terrific group of dads! Thanks to everyone who entered their dad/husbands! You are all so lucky and fortunate to have such committed and loving guys in your lives. 

Getty cannot wait to celebrate with her special guy as well. Their relationship is unique to anyone else in her life. She seems to giggle just a bit louder, snuggle a little bit tighter, and beam from ear to ear when dad arrives.

Happy Father’s Day to all the extraordinary dads out there. Thank you for giving it all you’ve got. 

To the following dads chosen, enjoy your Kayla Jean Cookies! We hope you have a very special day with your family. 

Glen

        Daddy is fun and gives good snuggles!

Dad Davis  

      Makes me happy and loves watching robot, dinosaur, and superhero movies with me. 

James

Thoughtful and a super dad!

Chris

        Dad is amazing! He protects me, brings    me presents, and takes me to Disneyland! 

       Matthew

He is committed to us, brave, patient, and is truly amazing! 

Jon

    Supportive and always finds ways to make my life awesome!

Gene 

The “Gene if all Trades”! He is caring and so thoughtful. 

Tracy 

   Always supportive and always trying to make easier for our family. Always goes above and beyond for us.

Richard

Dad never gets tired and takes good care our family!

Kevin

He is our hardworking dad, master musician, and always takes time for us.

Dads and Grads Giveaway!

From Kate:

I know right, another giveaway! Yep, there you have it. 

Before I move forward, I do want to promise that this summer will be full of Getty updates. Truth be told 3rd grade has raised the bar big time and by the end of the day, Getty is tired and so is this mama. This past year has been so wonderful and consistent. HUGE emphasis on the word consistent! There is so much to share and I promise I will get on it. Here are some upcoming topics:

-3rd grade and moving forward

-Nutcracker

-Christmas

-Spinraza

-Birthday celebrations

-Vacation Tradition

-Growing

-Running Chair 

But for now…….let’s get to the giveaways! 

Last year we celebrated Mother’s Day with a fun giveaway. Kayla, an amazing SMA mama, created some yummy cookie bouquets. 10 amazing SMA moms were each gifted an arrangement. 

So here we are in 2019, and it only seems right that the dads are next. Yep, dad it is your time to shine. Thanks to Kayla and her business, Kayla Jean Cookies, 10 awesome SMA dads will get their own SMA SuperDad Cookie bouquets. 

So families I need your help. Here is your moment to tell us all about your dad and how he is just the “bee’s knees”! 

Email us at hoot@gettyowl.org with the following information:

-Dad Name

-Your Name

-Address

-Attach picture of your dad. 

Please answer the following questions: 

-What is your dad’s superpower? 

-What qualifies your dad to be added to our giveaway pool? 

Details: 

-Giveaway deadline is June 4th.

-As always, Getty Owl Foundation serves the SMA community and will only accept those submitted entries. All dads will be considered for those who have SMA or care for a child/children with SMA. 

-One entry per SMA Dad.

-Recipients will be chosen at random. 

-Recipients will be announced on June 6th. 

Okay now for our NEXT giveaway! In years past we have offered giveaways for SMA children for beginning and end of the school year. This time we would like to acknowledge and celebrate those individuals graduating and moving towards your next step in your education. How awesome must you be feeling about your accomplishments and where this new chapter will take you. Congrats Grad! We are so proud of you! 

We will be giving away 4 iPad Getty Owl Foundation Packages. Here is a picture. 

Awesome huh! We hope this package can get you off to a great start. 

Please email your entry to hoot@gettyowl.org.

Criteria:

-Grad who will be entering any of the following levels of study. College, Trade School, Graduate School, Junior College in the Fall 2019 school year.  

Details:

-Name 

-Address

-School you will be attending Fall 2019. 

-Attach a picture of yourself. 

-One entry per individual. 

-As always, Getty Owl Foundation offers support and resources to those in our SMA Community. Only those affected by SMA will be considered for entry. 

-Deadline for entires is June 4th.

-Recipients will be chosen at random.  

-Recipients will be announced June 6th. 

Alright, that’s it! Get your entires in and we will be back on June 6th to announce the recipients of the SMA Super Dad Cookies and Getty Owl Foundation iPad packages! 

Good luck to all! 

Ear Pillow Recipients Announced!

From Kate: 

Truth be told, I love giveaways! I LOVE THEM! I am so thankful Getty Owl Foundation has the ability to gift items to our SMA community. Knowing we are able to find ways to offer support to families just like us is serious therapy for me. 🙂

I know all too well how a day can start out wonderful and change in an instant when your child is in need of something life threatening. It is jarring and it only takes a second to change your child’s life and your weary heart as a parent. So while our giveaway was just for an ear pillow, it is a lot more than that. I remember when Getty was younger, we were given a gift of an ear pillow and it meant the world to me. It meant Getty would be more comfortable sleeping at night. It meant someone out there in the universe had thought about the special need our daughter had and filled it. It gave me some calm assurance that there were other SMA human beings out there that may be walking a similar path. 

Terri Taylor and Nancy Boman, this what you both offered to our SMA community. Thank you so much for filling a need to so many. We can’t thank you enough. 

Here is a list of our Ear Pillow Giveaway recipients:

Aurora

Jericho

Gavin

Kristen

Samuel

Constance

Ryan

Alethea

DeAnn

Elizabeth

Aubriana 

Ember

Brett

Mateo

Claire

Emma

Nick

Kennedy

Jaci

Kate

Jayke

Isabelle

Kaitlin

Caitlin

Jackson

Isaac

Nawai

Gracyn

Emma

Armani

Killian

Charlie

Kaige

Tina

Wyatt

Andrew

Leah

Elliette

Emmett

Victoria

Sheyenne

Ariane

Lincoln

Wade

Haley

Elliot

Samantha

Ear Pillow Giveaway

From Kate: 

I would like to start by saying, the SMA community is one of ultimate support. We all find ways to help each other. Mental health, care strategies, sharing personal testimonials, offering a supportive ear, making gadgets, building ramps, sharing supplies, suggesting positional aides, etc. This is an incredibly short list on how SMA families have found ways to lessen the load and care for each other. While it is true that we all know our kids better than doctors, having fellow SMA virtually to lend support is like having an extended family around the world. 

I would like to thank two individuals who came up with an amazing giveaway for our community. The idea was to make and giveaway ear pillows like the one Getty is using in this picture. Ear pillows are such a game changer for kids and adults. Speaking from our experience, Getty cannot use regular pillows because they smoosh her ear. Because she is non-ambulatory, she doesn’t have the ability to move her head and so a smooshed ear can not only be uncomfortable but it can also cause pressure sores and skin breakdown.  Ear pillows have a hole in the middle, so her ear is clear from any pressure. They are so amazing! 

These two amazing people saw a need in our community and they are filling it with this giveaway, Getty Owl Foundation is just a vehicle for distributing the pillows. 🙂 Please join me in thanking Nancy Boman and Teri Taylor. 

Thank you both for finding a way to make a difference for our loved ones. Thank you for you time and resources to make 50 ear pillows! We are so thankful for your willingness to help others. 

Again, I know this goes without saying, but this giveaway is for the betterment for all persons living with SMA. Thank you for understanding. 

For those interested, email us at hoot@gettyowl.org:

Name

Age

Address

Attach a picture of you or your family member so we can make a collage with all of the recipients. 

These is no deadline. Once we hit 50, I will update this post to announce the recipients. 

14 Reasons to Celebrate Recipients!!!!

From Kate: 

Can I just say THIS is the best part of establishing Getty Owl Foundation! The realization that we as a foundation, have the financial resources to put iPads into the hands of so many awesome kiddos! We are blessed and so thankful to be able to contribute to our SMA community. Thank you to all who have donated to GOF. Thank you for offering this gift for us so we can in turn support others. 

Here are our 14 Reasons to Celebrate! 

Congratulations and enjoy!